The Invisible Weight: Mental Health and Chronic Illness

Ranging from National Suicide Prevention Month in September, to National Stress Month in April, to BIPOC Mental Health Month in July, mental health is a recurring topic throughout the year. Similar to myself, mental health is a year round battle, with these months holding special places in my psyche. Awareness is key, especially as someone with an autoimmune disease. As someone with an autoimmune disease and actively in therapy, mental health is an ongoing journey as I move away from my youth. Focusing on connecting with old friends, picking up hobbies, and finding satisfaction in my work has been hard. Plus, having Crohn’s disease, I am at an increased risk for exhibiting suicidal tendencies—like depression and anxiety.

Let’s delve into some research, along with some introductory tips from my own experiences, to help support everyone’s mental health. 

Individuals living with an autoimmune condition such as Crohn’s disease or rheumatoid arthritis can be more susceptible to mental health issues. Globally, at least 1 in 10 people have a mental health condition, with anxiety and depression being the most common. For people with autoimmune conditions, several studies have shown that symptoms of anxiety and depression are over 50% higher, especially in young adults. While the reasons are diverse, the most common include autoimmune conditions masking mental health symptoms and a disconnect between a patient and their doctor. Specifically, increased inflammation in the body can disrupt delicate mood-regulating reactions in the brain and nervous system. 

In one study focusing on rheumatic conditions and mental health, many patients attributed their current mental state to their chronic condition—many did not consider that both a chronic disease and mental health could be linked. Simultaneously, for patients with mental health symptoms, exploring options with a doctor can be daunting, and at times, downright frustrating. Several patients across studies noted how their doctor may be over-reliant on a rubric or chart when diagnosing a mental health condition; an over-reliance on a rubric can invalidate a person’s lived experiences. Coupled with existing systemic barriers to healthcare, such as high healthcare costs or location, people with autoimmune conditions are significantly affected by mental health issues. 

For myself, my mental health journey has been a constantly evolving landscape. For many years, I tended to catastrophize situations and social interactions—sometimes to the point of hyperventilation and paralysis. During my sophomore year of undergrad, I faced several experiences that pushed me emotionally and mentally. A tough breakup, coupled with the death of a loved one and dissatisfaction with my professional life, culminated in a perfect storm of isolation. Outside of academics, work, or social obligations, I realized I had no personal coping mechanisms to process my feelings. I would spend evenings either journaling or lamenting internally, wondering how to escape the catastrophizing spiral—especially around my professional life.  

Simultaneously, I would (and still do) suffer panic attacks when a situation seems dire and uncontrollable. Later, while studying abroad in Australia, I finally took action to address my emotions and homesickness. By living 12000+ miles from home, coupled with not knowing anyone in my cohort, I was both geographically and socially isolated—initially anyway. I realized I needed to focus on the root of my anxiety, not just cover it with social distractions. During that time and into my senior year, I attended more than a dozen counseling sessions at my university. A key lesson I learned is that counseling can provide short-term support, but therapy is where long-term progress happens.  

Since graduating, and with my parents’ support, I found a therapist who works with young adults. We reviewed different providers through my primary doctor’s clinic, as well as other providers recommended by our insurance, and reached a mutual decision on a provider. Together, we are addressing my anxiety, tendency to catastrophize, and other personal challenges. Therapy has been one of the most effective strategies I can recommend—it has helped me in the moment while also fostering long-term healing. It can be difficult, even draining at times, but the growth that follows is invaluable. Therapy is not going to solve problems overnight, but it will provide tools and insights into helping your mental state. 

Below, I’ve included a few parting tips from my own journey, along with mental health resources you may find helpful. 

  • If you’re a student, reach out to your guidance counselor or your university’s health office—counseling can be truly helpful.
  • It’s okay to feel your emotions, acknowledge them, and take time to process bigger moments—whether good or bad. The key is what you do afterward.
  • It is also okay to ask for help—especially if you feel trapped or siloed. For myself, I struggled with reaching out until my emotions exploded like soda pop.
  • Therapy isn’t just for people with serious concerns. Think of it like visiting your doctor for regular check-ups—mental health directly affects physical health.
  • When looking for a therapist, ask your primary doctor about their connections—your insurance may cover more than you expect. Your insurance provider may also have a tool that can help find covered therapy providers as well!
  • For me, journaling and escapism (like geeking out over Marvel or playing trombone) have been excellent outlets to manage emotions. Try picking up a new hobby or returning to a past passion.
Source: Alabama Department of Mnetal Health

988 Suicide & Crisis Lifeline: Call or text 988 to connect with a trained counselor 24/7. This free and confidential service is for anyone in suicidal crisis or emotional distress. You don’t have to be suicidal to call.

Crisis Text Line: Text HOME to 741741 from anywhere in the U.S. to connect with a crisis counselor. It is free, confidential, and available 24/7. 

The Trevor Project: Call 1-866-488-7386 or text START to 678-678for 24/7 crisis intervention and suicide prevention services for LGBTQ young people under 25. 

Veterans Crisis Line: Dial 988 and press 1, text 838255, or chat online at veteranscrisisline.net for veterans and active-duty military. 

National Domestic Violence Hotline: Call 1-800-799-7233 or text START to 88788 if you or someone you know is experiencing domestic violence. 

Disaster Distress Helpline: Call or text 1-800-985-5990 for immediate crisis counseling related to disaster

References

Brundin, L., S. Erhardt, E. Y. Bryleva, E. D. Achtyes, and T. T. Postolache. 2019. “The Role of Inflammation in Suicidal Behaviour.” Acta Psychiatrica Scandinavica 132 (3): 192–203. https://doi.org/10.1111/acps.12458. 

Conrad, Nathalie, Shivani Misra, Jan Y Verbakel, Geert Verbeke, Geert Molenberghs, Peter N Taylor, Justin Mason, et al. 2023. “Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the UK.” The Lancet 401 (10391). https://doi.org/10.1016/s0140-6736(23)00457-9. 

Gordon, Sherri. 2024. “People with Autoimmune Diseases Experience ‘Significantly’ More Mental Health Symptoms, Study Shows.” Health. 2024. https://www.health.com/autoimmune-disease-mental-illness-7569310#citation-3. 

Mudra Rakshasa-Loots, Arish, Duncan Swiffen, Christina Steyn, Katie F M Marwick, and Daniel J Smith. 2025. “Affective Disorders and Chronic Inflammatory Conditions: Analysis of 1.5 Million Participants in Our Future Health.” BMJ Mental Health 28 (1): e301706. https://doi.org/10.1136/bmjment-2025-301706. 

Ravan, Jayaprakash Russell, Sucheta Chatterjee, Pratima Singh, Debashis Maikap, and Prasanta Padhan. 2021. “Autoimmune Rheumatic Diseases Masquerading as Psychiatric Disorders: A Case Series.” Mediterranean Journal of Rheumatology 32 (2): 164. https://doi.org/10.31138/mjr.32.2.164. 

Sloan, Melanie, Chris Wincup, Rupert Harwood, Thomas A Pollak, Efhalia Massou, Michael Bosley, Mikko R. A. Pitkänen, et al. 2023. “Prevalence and Identification of Neuropsychiatric Symptoms in Systemic Autoimmune Rheumatic Diseases: An International Mixed Methods Study.” Rheumatology, July. https://doi.org/10.1093/rheumatology/kead369. 

Destigmatizing Mental Health Through Creative Mediums

On April 2, 2026, Young Patients’ AREA hosted “Destigmatizing Mental Health Through Creative Mediums,” an event for young people living with autoimmune conditions to explore how art and writing can support mental health, identity, and connection. The virtual event provided participants with a brief education about how to use creative approaches to drive their healing. Then, participants had hands-on time to make art or write, along with the chance to share their work in a safe space, for those who wished to do so.

Mental health and autoimmune disease

Living with an autoimmune condition can bring increased risk for depression, anxiety, and other mental health challenges, in part because of chronic inflammation, pain, fatigue, uncertainty, and frequent encounters with healthcare systems. Research has found that people with autoimmune conditions experience mood and anxiety disorders at nearly double the rate of people without these illnesses, with women disproportionately affected (Mudra Rakshasa-Loots et al, 2025 & Li et al, 2024). 

For many young people, these numbers match what they feel but do not always say out loud: grief for a “before” version of themselves, fear about flares or progression, and the emotional weight of medications, procedures, and lifestyle changes. Naming these realities clearly helps shift the conversation away from blame or “not trying hard enough” and toward a more compassionate understanding that mental health is intertwined with chronic physical illness. 

Creative approaches to healing and self-understanding: Art Therapy and Narrative Medicine

Art therapy uses creative processes—drawing, painting, collage, movement, and more—to help people express experiences and emotions that may be difficult to put into words, especially around chronic illness and pain. Colors, symbols, and shapes can sometimes hold fear, anger, or hope more safely than direct conversation, and making art can provide both release and a sense of agency. 

Narrative medicine focuses on illness stories: telling, listening, reading, and writing about health experiences in ways that support understanding, meaning-making, and better care. Reflective writing or storytelling can help someone trace their own path through symptoms, diagnoses, and treatment, and can strengthen their voice in medical encounters and relationships. 

Together, these approaches offer images for what cannot yet be spoken and words for what needs to be reflected on and integrated. Studies in chronic illness and rheumatologic populations suggest that creative practices like these can support stress relief, coping, reduced isolation, and even improvements in physical health scores and sense of connection.

Prompts used during the event (that you can use, too!)

For Art: Use colors, shapes, textures, and symbols to represent “who I was,” “who I am now,” and “who I’m becoming”. It does not need to be anatomically correct; just show how you feel. 

For Writing: Write a letter to your body, past or present. What do you want to thank it for? What do you need from it? What do you want it to know? 

For Art and Writing: How do you choose to take care of your health and what does “choosing to take care of your health” mean to you? 

For Art and Writing: Draw a safe place, real or imagined, where your mind feels calmer; add words for what that place gives you—peace, warmth, quiet, and so on.

Artists and writers living with autoimmune and chronic illness

Well-known artists and writers 

  • Selena Gomez – musician, lupus 
  • Tyler James Williams- actor/rapper, IBD 
  • Nick Jonas – musician, type 1 diabetes 
  • Nick Cannon – performer, lupus nephritis 
  • Toni Braxton – musician, lupus 
  • Seal – musician, discoid lupus 
  • Clairo – musician, juvenile idiopathic arthritis 
  • Susannah Cahalan – writer, anti-NMDA receptor encephalitis 
  • Ali Guthy – memoirist, neuromyelitis optica 
  • Laura Hillenbrand – author, ME/CFS 
  • Frida Kahlo – painter, chronic pain and complex medical conditions (including autoimmune-related complications) 

Smaller artists and writers 

  • Autoimmune Expressions gallery (multiple artists) 
  • Donna Gallers – mixed media and watercolor, rheumatoid arthritis and Sjögren’s 
  • Autoimmune Artist (@autoimmuneartist) – Instagram-based creator 
  • Suzanne Edison – Poet, mother to juvenile idiopathic arthritis 
  • Jenny Lawson – writer/blogger, rheumatoid arthritis and multiple chronic conditions 
  • Nitika Chopra – writer and advocate, psoriasis and psoriatic arthritis 
  • Crafting a Path Through Illness (@craftingapaththroughillness) – fiber arts, slow craft, chronic illness 
  • (Young Patients’ AREA’s very own) Chaylee McCleese – writer, psoriatic arthritis