Can a work program help people with scleroderma stay in the workforce longer?
An occupational therapy-led program showed promise in helping people with scleroderma feel more confident balancing their work responsibilities with their health. Having a group with peers created connection and accountability to take steps toward staying employed long term.
Many people with autoimmune diseases struggle to stay in the workforce because managing symptoms at work can be challenging.
The research team adapted an existing Canadian program, Making it Work, for people with scleroderma in the United States.
In a one-time meeting, we shared input on how to adapt the program to be relevant for young patients just getting started in their careers. We provided advice based on their own experiences with work, career planning, and managing our illness on the job.
Key Findings
In this small study, participants who completed the program reported feeling more confident managing their illness at work compared to before the program and compared to those who did not participate.
Younger participants valued learning from and connecting with people who had been in the workforce longer. Talking openly about work —a topic that is often overlooked in other support groups — helped people stay motivated and feel less alone in their career goals.
