Our work is for young patients by young patients and informed by evidence-based research.

Young Patients’ AREA:

  • Trains and mentors young patient leaders on how to be involved in research
  • Advocates for young patients’ voices to be heard in healthcare and health research
  • Provides young patients’ input on research studies
  • Consults on how to include young patient partners on research teams
  • Conducts research that is meaningful to young patients
  • Translates research for young patients to use in their decision making
  • Provides community events to support patients navigating young adulthood with an autoimmune disease
  • Is a resource for patients, healthcare providers, and researchers who are interested in working together

Hilary Cronon

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