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Our Stories

The Invisible Weight: Mental Health and Chronic Illness

Nick Mertens July 2, 2026

Making it Work During the Week: Meal Prep with Chronic Illness

Kelsey Schneider June 17, 2026

Destigmatizing Mental Health Through Creative Mediums

Ela Chintagunta April 7, 2026

Science is Hope

Courtney Wells March 30, 2026

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We are the Young Patients' Autoimmune Research and Empowerment Alliance- trained patient partners making research inclusive for young adults like us.

NEW BLOG POST. Previous Council Member Nick opens

NEW BLOG POST. Previous Council Member Nick opens up about his experience with managing his mental health while having an autoimmune condition. Link in bio! #MentalHealthMatters #Spoonie #ChronicIllness #HealthCare #AutoImmune #MentalHealth

Thanks for attending our event the other day! Stay

Thanks for attending our event the other day! Stay tuned for more information on lupus and navigating treatment options! #Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

Here is Chaylee's last Sick Lit Summer book rec! S

Here is Chaylee's last Sick Lit Summer book rec! Swipe for a bonus book! Did you complete the challenge and read 3 books? If so, comment below! #SickLit #Summerreading #Chronicillness #AutoImmuneDisease #Spoonie

Do you have lupus and are uncertain about your tre

Do you have lupus and are uncertain about your treatment options? Then join us to learn about shared decision-making, tips for navigating health information and treatment, and resources to help you. #Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

Meet Lya, founder of Cryptic Wings and our Guest S

Meet Lya, founder of Cryptic Wings and our Guest Speaker for My Lupus, My Voice! You do not want to miss this event on Wednesday, July 22nd! Link in bio! @crypticwings_ #Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

Register for "My Lupus, My Voice" to learn more ab

Register for "My Lupus, My Voice" to learn more about Lupus, and hear from people like you. #Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

It's July, which means Chaylee is reading more sum

It's July, which means Chaylee is reading more summer books with disability rep. This week she read If You Were Here by Abigail Johnson. #SickLit #Summerreading #Chronicillness #AutoImmuneDisease #Spoonie

Are you frustrated by poor healthcare experiences

Are you frustrated by poor healthcare experiences and tired of facing them alone? We want to help. During this event, we will discuss shared decision-making, tips for navigating health information and treatment, and resources to help people with lupus learn about their disease and treatment options. We want to help you, and we want to hear your voice.

#Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

We are so excited to announce our next event, "My

We are so excited to announce our next event, "My Lupus, My Voice!" Register now using the link in our bio and stay tuned to learn more about the event and our guest speaker! #Spoonie #ChronicIllness #Research #Lupus #LupusAwareness #AutoImmuneDisease

Uh-oh! Summer can present unexpected challenges wh

Uh-oh! Summer can present unexpected challenges when it comes to traveling and refills for your medications. What would you do in this situation?

#ChronicIllnes #Spoonie #AutoImmuneDisease #WWYDW #Research #YoungPatients

Happy Pride Month from Young Patients' AREA! Over

Happy Pride Month from Young Patients' AREA! Over the years, we have made many posts and blogs highlighting the importance of celebrating all identities. Here are a few of our best!

#ChronicIlness #Pride #PrideMonth #AutoImunne #LGBTQ #Reserach #HappyPride

Add a little whimsy to your life! How do you add a

Add a little whimsy to your life! How do you add a little sparkle to your day-to-day when life with a chronic illness feels so difficult? #Spoonie #ChronicIlness #Research #Whimsy #AutoImmuneDisease

Chaylee's first summer book rec is The Summer of I

Chaylee's first summer book rec is The Summer of Impossibilities by Rachael Allen. What are you currently reading? Does it have disability representation? If so, drop it in the comments below!

#SickLit #Summerreading #Chronicillness #AutoImmuneDisease #Spoonie

Join council member Chaylee and participate in a s

Join council member Chaylee and participate in a sick lit summer reading challenge! By the end of August, you must read three books with disability rep! Stay tuned for her poolside recommendations. What are you reading this summer? #SickLit #Summerreading #Chronicillness #AutoImmuneDisease #Spoonie

Meet Hayden! Hayden is the project leader of our e

Meet Hayden! Hayden is the project leader of our event planning committee and is finishing his master's degree in communication studies this summer! In his free time, he enjoys D&D, miniature figure painting, photography, and dancing. Check out his BLOG POST "Giving Lupus a Purpose" to learn about how he got into advocacy work. Link in bio!

#Lupus #LupusNephritis #LupusAwarenessMonth #YoungPatients #Autoimmune #ChronicIllness

Research hits different when it's made with young

Research hits different when it's made with young patients.

Tell us - what's important to you?

Lots of new faces here, so time for a reintroducti

Lots of new faces here, so time for a reintroduction. Hi! We are Young Patients' AREA.

We empower young people with autoimmune conditions to speak up for what matters to them, use research to make healthcare less confusing, and build a community so no one has to feel alone.

Glad you're here.

May is Lupus Awareness Month! When Hayden was diag

May is Lupus Awareness Month! When Hayden was diagnosed with lupus 9 years ago, he thought that a diagnosis and treatment would give him relief, or even hope. "But all I remember is feeling helpless." So he decided to give his lupus a purpose, and got involved in advocacy work. Read more about his journey in his BLOG POST about giving lupus a purpose! Link in bio!

#Lupus #LupusNephritis #LupusAwarenessMonth #ChronicIllness #Autoimmune #YoungPatients #BlogPost

Meet our DRIVERS of change for @worldaiarthritsday

Meet our DRIVERS of change for @worldaiarthritsday. Raise awareness and make a difference. #AiArthritisDay #LearnArthritis #DriveAwareness #WorldAiArthritisDay

@ifaiarthritis

Today, May 19th, 2026, is World IBD Day! (More Tha

Today, May 19th, 2026, is World IBD Day! (More Than the Gut) Inflammatory bowel disease affects young patients all around the world. At Young Patients' AREA, we strive to raise awareness and empower patients to use their voice and story to drive research.

#WorldIBDDay #IBD #ibdAwareness #Inflammatoryboweldisease

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